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howell58's Recent CancerCompass Activity

  • howell58 has replied to a post on the message board

    Hello-For any type of sarcoma you need to get to a team of sarcoma specialists.  My husband has a lipsarcoma of the retropertoneal.  He has been with Sloan Kettering in NY going on 11 years now. It is a rare cancer, and the oncologist here in NJ where we live didn't give us a choice of where we needed to get treated because most doctors will never see a sarcoma in their lifetime of practice.

    July 23, 2018 view post
    • howell58 has replied to a post on the message board

      Hello My husband has been fighting this cancer for almost 11 years. He has just gone through his 8th surgery, as the cancer has recurred and he also has had metasasis to his lungs. Last surgery was due to tumor causing bowel obstruction. Most importantly, is that you find a sarcoma specialist/hospital.  This is a rare cancer and must be treated by those whom specialize.  My husband is a patient at Sloan...

      June 21, 2018 view post
      • howell58 has replied to a post on the message board

        Christa--- Radiation is dangerous and has alot of risks due to location in retroperitonium. My husband just went through surgery for bowel obstruction caused by dediff tumor. Prior to surgery had five days of radiation due to the location of the tumor and the blockage, needed immediate relief as surgery to the tumor at this time was also too risky. Everything depends on the individual and the type of sarcoma.&nbs...

        May 25, 2018 view post
        • howell58 has replied to a post on the message board

          Roberto- that is great news!  I hope you have been otherwise feeling well.  We return Feb. 13th for next scan results.  Sadly, its always a wait and see approach with this cancer and one good scan doesn't always mean the next scan is good and visa-versa. One day at a time and we are thankful and blessed with each good one! Sue

          January 27, 2018 view post
          • howell58 has replied to a post on the message board

            Our oncologist told us once the Olaratunab stops working, he would move onto Erublin.

            January 26, 2018 view post
            • howell58 has replied to a post on the message board

              Jolia My husband has been on olaratunab, first 8 cycles in combo with doxirubin, by itself since end of Sept Our docs mentioned another immunotherapy thats out there for which my husband would be a good candidate for, but I don't remember the name.  What I do know is that they hadn't had enough study info back on it to move forward with it for my husband.  I do believe the letter "P" was a part of it thou...

              January 26, 2018 view post
              • howell58 has replied to a post on the message board

                hello there. My husband has been fighting retroperitoneal liposarcoma for 10 years.  A very rare cancer indeed, with little options for treatment. He is a patient at memorial sloan kettering in NYC.  I truly credit them for keeping him with me this long. For his sarcoma, surgery is the best management, however, he once again has had lung metastasis.  (third time) He went through his 8 cycles of Dox...

                January 15, 2018 view post
                • howell58 has replied to a post on the message board

                  Wifetracey- I am so sorry to hear of your husband's diagnosis and challenges. I have many posts on this site regarding my husband's retroperitoneal liposarcoma.   He's been fighting 10 years now. Started attached to kidney, and had to lose that.  Here is NJ, they didn't get clear margins. Once pathology determined that it was sarcoma, we were sent to Sloan Kettering in NY Since diagnosis, he has had 7 s...

                  December 03, 2017 view post
                  • howell58 has replied to a post on the message board

                    Roberto---- Sounds awesome!!!! My husband just had a scan, and we will be in NY on Tues to see doctor and get results.  I am quite nervous, as he's only been on the olaratumab since Sept.  If the cancer has shown growth this time around, I'm not sure what they have up their sleeves in the way of treatment.  You hang in there and I'm sending my prayers and well wishes to you hoping for success with t...

                    November 17, 2017 view post
                    • howell58 has replied to a post on the message board

                      I also think during cycle 6 or 7, my husband had to skip the doxi and just do the olaratumab because his wbc and anc were too low.  He bounced back the following week. So keep an eye on your bloodwork as well. Eat good and stay hydrated, put yourself first! Keep me posted! Sue

                      October 30, 2017 view post
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                      About howell58

                      Patient, Caregiver
                      Sarcoma
                      Cancer Diagnosis, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Surgery

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