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jamiep's Recent CancerCompass Activity

  • JamieP has replied to a post on the message board

    Karen, I have sent you a private message Jamie

    August 01, 2017 view post
    • JamieP has replied to a post on the message board

      Hi Evelin I am going to send you a private message Jamie

      August 01, 2017 view post
      • JamieP has replied to a post on the message board

        Ive had so many biopsies it's crazy! I was diagnosed with EMPD by punch biopsy and had several surgeies. About 7 months after my last one I had another biopsy and it came back as Lichen Sclerosis. They mimic each other with about the same symptoms. If you've been using a steroid for a while it can cause thinning of the skin and cause burning and bleeding.  Both of these are to the vulva. I hope I helped just a ...

        November 17, 2015 view post
        • JamieP has replied to a post on the message board

          I've had 4 surgeries,  one with a skin graft. I belong to a private group on Facebook, if you  would like to join send me your email address and I'd be happy to send you an invite. Jamie

          November 02, 2015 view post
          • JamieP has replied to a post on the message board

            Hello ladies! I am part of a group that has about 12 members with EMPD. I will send you a private message about it. Jamie

            July 24, 2015 view post
            • JamieP has replied to a post on the message board

              Please see a gyn oncologist. They are trained to look for this type of stuff. I have a rare vular cancer and 2 regular gyn drs missed it. You should have a biopsy to confirm what is going on. Insist on one and don't let someone treat it without one. This area is often misdiagnosed... Best of luck to you! Jamie

              March 24, 2015 view post
              • JamieP has replied to a post on the message board

                I responded to the other post you comented on. I have sent you a private message. I hope to talk with you soon!

                March 01, 2015 view post
                • JamieP has replied to a post on the message board

                  So glad you found this forum!! My first advice is to take a deep breath.. You are not alone, although I know it feels like it. I could go through my whole story on here but this is not a private site. I have sent you a private message. Hope to talk to you soon!

                  March 01, 2015 view post
                  • JamieP has replied to a post on the message board

                    Dawnpid, I sent you a private message... Looking forward to talking with you, Jamie

                    view post
                    • JamieP has replied to a post on the message board

                      I am 52, had my first surgery at 51. I'm so sorry you developed an allergy, that's awful. I hope you are feeling better soon. This type of surgery really takes a toll on you, physically and mentally! I've heard of many woman having multiple surgeries for this... hoping to kick it soon!

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