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jeanssister's Recent CancerCompass Activity

  • jeanssister has replied to a post on the message board

    Thank you, thedayna1. I'll look at the clinical trial website and see what I can find out. I'm afraid my sister may not be accepted into any trials since her initial Karpinskly Score was too low. It's not fair to use a score generated so soon after completing radiation. Her cognition was not good that day. Maybe they'll retest when we're back at Duke on the 20th.  I hope this goes well! Your name is Dayna? Than...

    June 09 at 1:56 PM view post
    • jeanssister has replied to a post on the message board

      If you are on FaceBook, there is a glioblastoma cannabis oil support group. They can help.

      June 05 at 2:38 PM view post
      • jeanssister has replied to a post on the message board

        I look forward to hearing more about your visit to Vanderbuilt. My best thoughts and wishes are with you.

        June 03 at 6:53 PM view post
        • jeanssister has replied to a post on the message board

          Another good resource: http://virtualtrials.com/faq/BrainTumorGuidev8.pdf You can also order a hard copy for free from them.

          June 01 at 9:57 PM view post
          • jeanssister has replied to a post on the message board

            Is this a gene therapy? This document speaks about various Toca Gene therapies: "Treatment Options for Glioblastoma and other Gliomas" Original document authored by Ben A. Williams. It's pretty easy to find in a google search, and then search within the document for "Toca." I think it's chapter 9. Also, try going on FaceBook and joining any of the GBM support groups. They're really good about responding.

            June 01 at 9:44 PM view post
            • jeanssister has replied to a post on the message board

              I read a lot about the keto diet on various GBM support groups. If you're on FaceBook, and if your dad's diagnosis is what you suspect (I hope it isn't!), look at some of the support groups there for quicker responses to questions. Also, here's a good resource: "Treatment Options for Glioblastoma and other Gliomas Original document authored by Ben A. Williams." If you put this in your search window, it should be easy...

              June 01 at 9:40 PM view post
              • jeanssister has replied to a post on the message board

                Hi, I'm not sure what you're asking. Are you asking where/if any Tocagen trials are going on? Or are you being referred to one and you'd like to know about other people's experiences? I know nothing about it, but can help you with research if you're just looking for information. I'd also like to know if it's something my sister might be eligible for, so I'm up for the heavy lifting of research.   Thanks, B...

                June 01 at 9:33 PM view post
                • jeanssister has replied to a post on the message board

                  Hi Erin!  i'm really happy about Optune finally moving forward for Roger!

                  May 27 at 3:03 PM view post
                  • jeanssister has replied to a post on the message board

                    I'm so sorry.

                    May 15 at 8:44 PM view post
                    • jeanssister has replied to a post on the message board

                      What's "whatsapp"?

                      May 08 at 8:44 PM view post
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