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jeanssister's Recent CancerCompass Activity

  • jeanssister has replied to a post on the message board

    First, I'm sorry you're going through this. Feeling like you have no voice in something that is really a team effort is difficult, and maybe unnecessary(?) One option is to make sure your husband signs off (literally) on you being able to talk to the doctor outside of when your husband is present. This is a common thing, and allows you more information than you might otherwise gain, plus the chance to speak one-on-o...

    September 29 at 11:03 PM view post
    • jeanssister has replied to a post on the message board

      You bet. My best to you and yours!

      August 24 at 10:02 PM view post
      • jeanssister has replied to a post on the message board

        Hi Madison, I'm so sorry for the situation you're dealing with. There's nothing I can do or say to help you make a decision, but I just didn't want your query to go unresponded to. I can say, I suppose, when I have a big decision like this to make, I draw a line down the center of a piece of paper--sometimes several pieces of paper-- and write pros on one side and cons on the other. Sometimes just writing it down (l...

        August 24 at 3:07 PM view post
        • jeanssister has replied to a post on the message board

          You're not receiving any treatment for the low grade glioma? Have you consulted other oncologists?

          August 23 at 6:50 PM view post
          • jeanssister has replied to a post on the message board

            I'm so sorry. My sister has a GBM, and I understand what it means, at least to me, to have a sibling affected by this horrendous cancer. Have the annual MRIs been due to a benign tumor from the past? My sister had a grade II astrocytoma in 2004, and the MRI that discovered her GBM was a routine follow-up MRI, 13 years later. If his neuro-onc is "very uninvolved," can your brother seek another specialist? I'm not sur...

            August 23 at 6:47 PM view post
            • jeanssister has replied to a post on the message board

              Hi Chris, though I can't tell you my sister's astrocytoma never came back, I can tell you hers was inoperable, and only received radiation, no chemo. I'm not sure about the molecular report of that tumor. She was tumor-free for 13 years. So that's good news for you. And her tumor wasn't small like yours, either. Think about what 13 years buys you. Think about what 2 years buys anyone with a tumor, with science progre...

              August 19 at 5:31 PM view post
              • jeanssister has replied to a post on the message board

                meant to say "this fear is not good for you."

                August 13 at 5:10 PM view post
                • jeanssister has replied to a post on the message board

                  Please call your provider and ask for more information. This fear is not, and you employ this provider and deserve information. I wish I could help more.

                  August 13 at 5:10 PM view post
                  • jeanssister has replied to a post on the message board

                    I don't know if this link will help. I found it today when I was trying to find out if grade 2 gliomas are considered cancer. You don't have to try to understand everything said, but there may be something in there at the beginning of the article that informs you. It's a 2006 article, so dated, but the basics remain the same. http://theoncologist.alphamedpress.org/content/11/6/681.full

                    August 13 at 2:33 PM view post
                    • jeanssister has replied to a post on the message board

                      My sister, who now has a glioblastoma (stage 4), had a stage 2 glioma in 2004. Specifically, it was an astrocytoma. It was inoperable, and she received 6 weeks of targeted radiation, no chemo. She had annual MRIs. The glioblastoma was discovered in November. Again, inoperable. In April, after a short course of radiation (3.5 weeks) and treatment with Temodar (TMZ), the standard of care (SOC), the tumor doubled in siz...

                      August 13 at 2:24 PM view post
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