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jeanssister's Recent CancerCompass Activity

  • jeanssister has replied to a post on the message board

    meant to say "this fear is not good for you."

    August 13 at 5:10 PM view post
    • jeanssister has replied to a post on the message board

      Please call your provider and ask for more information. This fear is not, and you employ this provider and deserve information. I wish I could help more.

      August 13 at 5:10 PM view post
      • jeanssister has replied to a post on the message board

        I don't know if this link will help. I found it today when I was trying to find out if grade 2 gliomas are considered cancer. You don't have to try to understand everything said, but there may be something in there at the beginning of the article that informs you. It's a 2006 article, so dated, but the basics remain the same. http://theoncologist.alphamedpress.org/content/11/6/681.full

        August 13 at 2:33 PM view post
        • jeanssister has replied to a post on the message board

          My sister, who now has a glioblastoma (stage 4), had a stage 2 glioma in 2004. Specifically, it was an astrocytoma. It was inoperable, and she received 6 weeks of targeted radiation, no chemo. She had annual MRIs. The glioblastoma was discovered in November. Again, inoperable. In April, after a short course of radiation (3.5 weeks) and treatment with Temodar (TMZ), the standard of care (SOC), the tumor doubled in siz...

          August 13 at 2:24 PM view post
          • jeanssister has created a new message board discussion

            Here's a link to a good discussion on supplements: http://astrocytomaoptions.com/supplements/

            August 12 at 6:54 PM view discussion
            • jeanssister has created a new message board discussion

              Hi All, I read a report on my sister's glioblastoma and saw this: Microscopic examination shows an infiltrating glial neoplasm with microvascular changes. The Mib1 index is high. When I looked up "Mib1 index," I found that a high Mib1 index was not good, prognostically speaking. Anyone know? Or is this just one of the factors that diagnosis GBM over other grade tumors? Also, is "microvascular change" typical in GB...

              August 09 at 5:57 PM view discussion
              • jeanssister has replied to a post on the message board

                Thank you, thedayna1. I'll look at the clinical trial website and see what I can find out. I'm afraid my sister may not be accepted into any trials since her initial Karpinskly Score was too low. It's not fair to use a score generated so soon after completing radiation. Her cognition was not good that day. Maybe they'll retest when we're back at Duke on the 20th.  I hope this goes well! Your name is Dayna? Than...

                June 09 at 1:56 PM view post
                • jeanssister has replied to a post on the message board

                  If you are on FaceBook, there is a glioblastoma cannabis oil support group. They can help.

                  June 05 at 2:38 PM view post
                  • jeanssister has replied to a post on the message board

                    I look forward to hearing more about your visit to Vanderbuilt. My best thoughts and wishes are with you.

                    June 03 at 6:53 PM view post
                    • jeanssister has replied to a post on the message board

                      Another good resource: http://virtualtrials.com/faq/BrainTumorGuidev8.pdf You can also order a hard copy for free from them.

                      June 01 at 9:57 PM view post
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