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jefuchs's Recent CancerCompass Activity

  • jefuchs has replied to a post on the message board

    My wife had a resection by dr. Prabhu.  We expected a short man with a mustache.  Not a tall handsome guy in cowboy boots.

    August 28 at 2:57 AM view post
    • jefuchs has replied to a post on the message board

      I started this thread, and I haven't posted an update in a long time. My wife passed away in January of this year.  For the last year of her life, the cancer was growing more aggressively, and nothing had any effect on it. She lived seven years, which is considerably less than average.  From the beginning, doctors told us that her cancer appeared more aggressive than the biopsy results indicated.  Th...

      August 03 at 4:30 PM view post
      • jefuchs has created a new message board discussion

        She passed away just over a week ago.  She had the codeletions, and every reason to believe that she'd be a long-term survivor.  Yet she didn't even make it to the average life expectancy.  Seven years after diagnosis, she succumbed to oligodendroglioma. She was a wonderful woman with a beautiful soul.

        January 16, 2017 view discussion
        • jefuchs has created a new message board discussion

          She's had oligo for 6.5 years with no symptoms.  But things aren't going so well now.  Within the last few weeks she's lost a lot of her functioning.  She has difficulty walking or handling simple tasks like tying her shoes.  She has weakness in her left arm, and numbness in her left leg. My guess: this is probably radiation necrosis.  It's been a full year since radiation, so the time frame...

          July 12, 2016 view discussion
          • jefuchs has created a new message board discussion

            My wife has a malignant lump that's a little over 1cm., and it's triple negative.  We've been told that chemo is recommended under these circumstances, but she cannot have chemo, because she is in treatment for brain cancer, which takes priority. Brain chemo will not affect the breast cancer, so her only breast cancer treatment will be surgery, and maybe radiation. That will cause her to be at higher risk for ...

            June 18, 2016 view discussion
            • jefuchs has replied to a post on the message board

              This discussion is five years old now, and I haven't updated our story in quite a while. My wife has had three recurrences as of now.  She also had a partial resection earlier this month.  The pathology report has confirmed that her diagnosis is now a grade 3 oligo. Last year she completed 11 months of temodar (cut short due to toxicity), and had an immediate recurrence.  She was sent for six weeks o...

              February 22, 2016 view post
              • jefuchs has replied to a post on the message board

                My wife had same diagnosis in 2009.  She has had no surgery except for biopsies.  Her cancer is spread across the corpus collosum and is in multiple spots in both hemispheres.  So surgery is not an option for her. She has been through two temodar treatments in five years, and is about to start radiation next week. She's doing great, physically and emotionally.  Just need to get the oligo to stop...

                May 14, 2015 view post
                • jefuchs has replied to a post on the message board

                  Where are you getting treatment?  We were told that this was not the right treatment for this diagnosis.  Went to MD Anderon and Duke.  Both said they don't recommend combining chemo and radiation for oligo II.

                  May 14, 2015 view post
                  • jefuchs has replied to a post on the message board

                    Interesting to see that this thread is still active after three years.  I started this, so I should post updates myself. My wife just finished her first month of Temodar for a recurrence.  She had no new growth for about two years, and when it started growing, it grew so slowly that doctors couldn't agree when to take action, or even agree on whether it's growing at all.  In February, it was apparent ...

                    May 15, 2014 view post
                    • jefuchs has replied to a post on the message board

                      To me, that really does seem like excessive treatment.  My wife's initial diagnosis was uncertain, so MD Anderson treated it as a grade 3 oligo to be on the safe side, and that was still less aggressive than your treatment.  She had Temodar only. After seeing two years' worth of MRIs, they concluded that it was a grade 2.

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                      About jefuchs

                      Caregiver
                      Brain Cancer
                      Cancer Nutrition, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support, Lifestyle, Radiation, Side Effects, Surgery

                      My wife was diagnosed with Oligodendroglioma grade II in November, 2009... shortly after her 49th birthday. MRI shows it has spread to other parts of the brain, and doctors tell us that it is possibly a grade III, but it's too risky to biopsy that deep in the brain. She does have the 1p 19q deletions. She started Temodar in January 2010. After 12 months of treatment, she was told she'd have to keep taking the Temodar another six months (now complete). Live is starting to get back to normal. We have been married 28 years. We were teenagers when we met, and have always been inseperable.

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