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joann01's Recent CancerCompass Activity

  • joann01 has created a new message board discussion

    I am stage 1 and being treated with 2 weeks of clobetasol propionate. and then 2 weeks of moisturizer.   My face is starting to get a rash and I use triamcinolone acetonide on that. Is there anyone that has the same treatment that I have.  I am beyond havig a few spots on the body so the cream is applied to the entire body. When I am very tired at night I remember I have to do that before going...

    April 25, 2019 view discussion
    • joann01 has created a new message board discussion

      I recently been diagnosed with stage 1 mycosis fungoides and my oncologist said a dermatologist can treat me. After using the clobetasol propionate 0.05% for 6 weeks the condition got worse and the dermatologist said I need to go back to the oncologist and be restaged. I went from a 10% coverage to a 50% coverage very quickly. I'm going to see a oncologist in a few weeks. Has any one had a similar experience....

      January 28, 2019 view discussion
      • joann01 has replied to a post on the message board

        It's been one year since you have been diagnosed , what treatment are you taking. I have been diagnosed with MF as well. I was stage 1 and using a steriod cream and the rash spread to 50% of my body. Dermatologist said I need to be treated by a oncologist.  My appointment isn't until 3 weeks and I am concerned about treatments that will make me sick. I am also mother/caregiver to my son who is stage 4 col...

        January 23, 2019 view post
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        About joann01

        Patient
        Non-Hodgkins Lymphoma
        Cancer Treatments

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