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loch14's Recent CancerCompass Activity

  • loch14 has replied to a post on the message board

    Hi there :) My husband was diagnosed with AA3 per Mayo, GBM per UT Southwestern here in Texas. This was May of 2017. By November of 2017, he was diagnosed with a second primary cancer, stage 3 colon cancer. The colon cancer wasn't a big shock bc colon cancer runs deep in his family tree. The brain cancer was a total shock. The timing of the colon cancer was also a shock bc less than a year prior, he had a clean a cle...

    February 21 at 4:07 PM view post
    • loch14 has replied to a post on the message board

      My husband diagnosed with AA3 last summer. Since then, we discovered he has Lynch Syndrome after he developed colon cancer later in 2017. I had his brain tumor tissue tested for dMMR and Microsatellite Instability. It came back that it was dMMR and was Microsatellite Instability High. The same genetic deletions were identified in the colon tumor tissue. This means that he qualifies to use Keytruda for both his colon ...

      February 15 at 5:08 PM view post
      • loch14 has replied to a post on the message board

        Thank you for the response. I'm sorry to hear about your mother. My husband's brother passed away 4 months ago with bladder cancer. I also am convienced he had Lynch too. We just received test results back that my husband's brain tumor is also dMMR and has high microsatalite instability. The same gene mutations in his colon tissue are found in the brain tissue. The Neuro here in Tx wants to keep on with Temodar even ...

        January 02 at 7:29 PM view post
        • loch14 has replied to a post on the message board

          Sorry, subject line is a victim of auto correct! It's supposed to read Lynch Syndrome not Lunch Syndrome

          December 20 at 6:14 PM view post
          • loch14 has created a new message board discussion

            My husband was diagnosed with a primary brain tumor May of 2017. His surgery was in June. He was the topic of a few conferences for the the neuro ocologists and neuro surgeons at Mayo. His biomarkers were not typical of most brain tumors. He's IDH wildtype but his MGMT is metholayted. TERT is absent. It look the Mayo Pathology 5 weeks to put an official name on it. Old science he's AA3 but on a molecular level, he's ...

            December 20 at 6:12 PM view discussion
            • loch14 has created a new message board discussion

              My husband was diagnosed with a primary brain tumor May of 2017. His surgery was in June. He was the topic of a few conferences for the the neuro ocologists and neuro surgeons at Mayo. His biomarkers were not typical of most brain tumors. He's IDH wildtype but his MGMT is metholayted. TERT is absent. It look the Mayo Pathology 5 weeks to put an official name on it. Old science he's AA3 but on a molecular level, he's ...

              December 20 at 5:37 PM view discussion
              • loch14 has replied to a post on the message board

                Hi, my husband was diagnosed earlier this year with AA3, but molecular levels are more in line with GBM. He had his surgery at Mayo in Rochester (we live in Tx). We have nothing but good to say about Mayo. His surgeon was amazing and the neuro oncologist is a blessing. He calls to check up on him now that we are home (even on a Sat afternoon). We haven't had any experience with Duke, so unfortunately i can't compare ...

                December 14 at 8:54 PM view post
                • loch14 has replied to a post on the message board

                  Hi John, My husband was diagnosed with AA3 this summer. He was switched to Keppra from Dilantin prior to his surgery. He shortly after began having hallucinations. It only happened while he was waking up in the morning or from a nap. I immediately notified the doctor and asked to have him taken off. He was put back on dilantin. After his surgery and during his radiation and temodar, we found out that dilantin interf...

                  November 08 at 4:41 PM view post
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                  About loch14

                  Caregiver
                  Brain Cancer
                  Cancer Treatments, Clinical Trials and Research, Diet, Hormone Therapy

                  My husband was diagnosed with brain cancer while visiting his brother in South Africa. He had been diagnosed with stage 4 bladder cancer 4 months before my husband was diagnosed. The silent hand of God has been evident every step of the way. We have 4 beautiful young children and we look forward to continuing to watch them grow! God is always good.

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