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lsbohicas's Recent CancerCompass Activity

  • lsbohicas has replied to a post on the message board

    Could be the decadron if taking that. I am on dex and temodar 5/28..i was getting major muscle cramps/spasms daily in my feet and legs.  I started taking 3 supplements : magnesium,calcium with vitamin D and potassium.  I did a test to make sure this was working and quit taking them for a couple days and the cramps returned.  I also drink a glass of oj everyday too.

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    • lsbohicas has replied to a post on the message board

      I too see the same doc at moffitt and have similar issues...I got verigo real bad about the time the tumor recurred and was one of my chief complaints when it reared its ugly the first time in 2002 which i have had no major bouts with till this recurrance but he says it has nothing to do with the tumor and refuses to deal with it told me to see an ent...BS...and for instance my  first chemo  round since i f...

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      • lsbohicas has created a new message board discussion

        I just finished my 5 day regime of temodar and experieced the most excruciating back and then joint pain ever...the docs were not that helpful...they called in a script for celebrex which my insurance denied, then they wanted me try ultram which i denied, i looked up side effects as i always do and it said if you have ever had seizures, head trauma or are taking anti-nausea meds do not take this medication, ok seriou...

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        • lsbohicas has created a new message board discussion

          I don't post often but feel the need to vent.  Up until 3 weeks ago my grade III astrocytoma recurred after 7 long years.  Now I am on united healthcare thru medicaid and they are putting me thru the ringer trying to get temodar.  First they denied me the treatment, said it was not medically necessary then they said ok but you have to get thru bioscrip mail order pharmacy now bioscrip is saying the med...

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