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lsv12's Recent CancerCompass Activity

  • lsv12 has replied to a post on the message board

    Just left husbands onc office and he is officially NED!!!! Its been a long 8 year journey to this Dx. He has tried 4 clinical trials and has been on Keytruda for the past 4 years. Keep pushing forward.....you can beat this.....be more than just a stastistic ....be the one to beat the odds!!!!!!

    March 07, 2019 view post
    • lsv12 has created a new message board discussion

      Just left husbands onc office and he is officially NED!!!! Its been a long 8 year journey to this Dx. He has tried 4 clinical trials and has been on Keytruda for the past 4 years. Keep pushing forward.....you can beat this.....be more than just a stastistic ....be the one to beat the odds!!!!!!

      June 28, 2018 view discussion
      • lsv12 has replied to a post on the message board

        I am sorry to hear that. Is he currently on another form of treatment?

        April 08, 2018 view post
        • lsv12 has replied to a post on the message board

          That is awesome news!!! Are you still getting treatment? My hubby has been on Keytruda for the past 3 years and down to 4 small tumors from total of 17. Hoping for a cancer free CT scan soon, however, we have already discussed with oncologist that he will still on track every 3 weeks. Only issues have have been same as you, itching, extreme fatigue and Diabetes 2, as well as some body aches.  I hope you stay NE...

          March 29, 2018 view post
          • lsv12 has created a new message board discussion

            Has anyone before being dx as NED come off the Anti-PD-1? My husbands onc keeps asking how much longer he plans on being on it.  He has had great success with this treatment. He has been on it for the past 4 years, dose #88. He has gone from 17 tumors with all but 4 still visable on CT scan.  They are quite small, thats why onc wants him to stop treatment. Outr question is ---- should he stop treatment wit...

            October 20, 2017 view discussion
            • lsv12 has replied to a post on the message board

              That is great news!!!! My hubby is still taking it, and will continue to until he hears the same news. That the scans are all clear.  Good luck to you!!

              December 27, 2016 view post
              • lsv12 has replied to a post on the message board

                I am sorry to hear this news. I have not been on this site for a while now because my husband has been doing very well on his treatment on a Keytruda clinical trial. He too has Stage IV metastatic melanoma.  He has been battling this since December 2016, 4 treatment plans later, this trial has been a miracle worker.  He started off with 16 tumors throughout his body and he is now down to 4 which are ve...

                July 27, 2016 view post
                • lsv12 has replied to a post on the message board

                  My husband has stage 4 metastatic melanoma. Has tumors all through-out his body.

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                  • lsv12 has replied to a post on the message board

                    He has now been on this trial for exactly one year!!!! His scans have shown up to this point a 78% shrinkage of all tumors with no new evidence.  We pray everyday it still keeps working. No real side effects, fatigue, itching ,and some pain. But he has had those symptoms all along.

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                    • lsv12 has created a new message board discussion

                      Well hubby is now on his 4th trial medication. Yervoy did not work.  After just 3 doses there was no shrinkage.  Got first dose of PDL-1 on Tuesday, I pray this is the miracle drug they keep saying it is.  He will get an infusion every 2 weeks. Please keep us in your prayers.  Getting weaker more every day. Just got approved for disability due to fatigue.  Can only work 3 5-hour days. It...

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                      About lsv12

                      Caregiver
                      Melanoma
                      After Treatment, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support

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