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lsv12's Message Board Messages

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RE: Stage 4 Melanoma

by lsv12 - March 07, 2019

Just left husbands onc office and he is officially NED!!!! Its been a long 8 year journey to this Dx. He has tried 4 clinical trials and has been on Keytruda for the past 4 years. Keep pushing forward.....you can beat this.....be more than just a stastistic ....be the one to beat the odds!!!!!!

Keytruda

by lsv12 - June 28, 2018

Just left husbands onc office and he is officially NED!!!! Its been a long 8 year journey to this Dx. He has tried 4 clinical trials and has been on Keytruda for the past 4 years. Keep pushing forward.....you can beat this.....be more than just a stastistic ....be the one to beat the odds!!!!!!

RE: KEYTRUDA WORKS

by lsv12 - April 08, 2018

I am sorry to hear that. Is he currently on another form of treatment?

RE: KEYTRUDA WORKS

by lsv12 - March 29, 2018

That is awesome news!!! Are you still getting treatment? My hubby has been on Keytruda for the past 3 years and down to 4 small tumors from total of 17. Hoping for a cancer free CT scan soon, however, we have already discussed with oncologist that he will still on track every 3 weeks. Only issues have have been same as you, itching, extreme fatigue and Diabetes 2, as well as some body aches.

 I hope you stay NED!!!!

Going off Anti-PD-1

by lsv12 - October 20, 2017

Has anyone before being dx as NED come off the Anti-PD-1?

My husbands onc keeps asking how much longer he plans on being on it.  He has had great success with this treatment. He has been on it for the past 4 years, dose #88. He has gone from 17 tumors with all but 4 still visable on CT scan.  They are quite small, thats why onc wants him to stop treatment. Outr question is ---- should he stop treatment without hearing that he is NED? Is he now taking it for no reason?

RE: KEYTRUDA WORKS

by lsv12 - December 27, 2016

That is great news!!!! My hubby is still taking it, and will continue to until he hears the same news. That the scans are all clear. 

Good luck to you!!

RE: KEYTRUDA WORKS

by lsv12 - July 27, 2016

I am sorry to hear this news. I have not been on this site for a while now because my husband has been doing very well on his treatment on a Keytruda clinical trial. He too has Stage IV metastatic melanoma.  He has been battling this since December 2016, 4 treatment plans later, this trial has been a miracle worker.  He started off with 16 tumors throughout his body and he is now down to 4 which are very minute in size.

I am surprised however, that your Onc did not start with the Yervoy, only because the Yervoy is given as drug of choice before the Ketruda. It helps to jumpstart the Ketruda.

Maybe thats why it hasn't worked the way its suppose to.I wish you both well and success. This is a horrible disease, stay positive, stay strong and have faith.

lsv12

 

My husband has stage 4 metastatic melanoma. Has tumors all through-out his body.

He has now been on this trial for exactly one year!!!! His scans have shown up to this point a 78% shrinkage of all tumors with no new evidence.  We pray everyday it still keeps working. No real side effects, fatigue, itching ,and some pain. But he has had those symptoms all along.

Well hubby is now on his 4th trial medication. Yervoy did not work.  After just 3 doses there was no shrinkage.  Got first dose of PDL-1 on Tuesday, I pray this is the miracle drug they keep saying it is.  He will get an infusion every 2 weeks. Please keep us in your prayers.  Getting weaker more every day. Just got approved for disability due to fatigue.  Can only work 3 5-hour days. Its hard to see a previously active, vibrant, hard-working man regress so fast. My family and I just let him rest and don't push him.

Showing 1 - 10 of 36

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About lsv12

Caregiver
Melanoma
After Treatment, Cancer Nutrition, Cancer Prevention, Cancer Treatments, Chemotherapy, Clinical Trials and Research, Conventional Treatments, Diet, Emotional Support

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