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maireadsmom's Recent CancerCompass Activity

  • maireadsmom has replied to a post on the message board

    Dear Stacy, What a beautiful tribute to your husband. God Bless you and your girls. I lost my husband Jerry on August 4, 2011. We were also married for 20 years and I have 2 children ages 18 and 16. I feel your pain and miss Jerry every minute of everyday. Your poem is so touching and filled with love.  I will pray especially for you and your family today. Many hugs and much love. Margaret

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    • maireadsmom has replied to a post on the message board

      So very sorry that another warrior has left us.

      Many prayers for peace and comfort in the days ahead and beyond.

      Margaret

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      • maireadsmom has created a new message board discussion

        My husband Jerry died peacefully at 11:48 p.m. on August 4, 2011 surrounded by his entire family. I still cannot believe he his gone from us.  I am so very sad. The first week of August I struggled with the idea of bringing Jerry to the Cape, but on the mornong of August 4th I made the decision along w/ family members and our wonderfful hospice nurse Peggy that it would be impossible.  I decided my childr...

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        • maireadsmom has created a new message board discussion

          Yesterday Jerry had another MRI because his symptoms were progressing.  As I knew in my heart the tumor is growing.  Hospice is here and we are beginning the final phase of our journey. The doctor told us 4 to 12 weeks but they said it is only a guideline.  Now my hope is to be able to spend a week on Cape Cod, as we have done for the last 25 years with Jerry's family.  My children have always l...

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          • maireadsmom has created a new message board discussion

            My husband Jerry had his 2nd avastin treatment on July 5th.  Since that time his is weaker, at times unable to walk, barely sits up when in a chair and rarely speaks.  So many have seemed to improve but Jerry seems much worse with the treatment. Has anyone experienced decline before they showed signs of improvement.  How long will they continue treatment at this point.  I am sooo not ready for th...

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            • maireadsmom has created a new message board discussion

              Jerry had his first Avastin treament on 6/15 due to a thickening of his tumor.  Seems to slowly be declining.  Very weak, cannot walk well, more confused and seems to have what I can only describe as "blankness" and shortness of breath. Spoke with the Dr. today and it was suugested we continue the next avastin treatment but introduce a "Bridge to Hospice" which will give us services at home.  It is of...

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              • maireadsmom has created a new message board discussion

                My husband just began Avastin treatment on Wednesday because his tumor had started to grow "mildly".  He has been soo much worse in the last week. He can barely walk, appetite is less. He had diarrhea 2x today. Very weak, especially left side.  I am very worried.  He will be having treatment every 3 weeks and an MRI scheduled for July 29th.  We are in our 7th month of this journey and I am af...

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                • maireadsmom has created a new message board discussion

                  My husband had minor swallowing problems since dx in November 2010. In the last month it is constant when drinking. The dr. and speech therapist said it is his problem with initiation. It is concerning to me. speech therapist tells me there is not much we can do but continue to cue him.  Jerry is on second round of temodar 21/7. Has anyone dealt with this issue and if so any tips. Margaret...

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                  About maireadsmom

                  Caregiver
                  Brain Cancer
                  Support, Emotional Support

                  My husband was diagnosed on November 23, 2010 with a GBM - just finished radiation and chemo - are on break for 4-5 weeks. MRI sceduled for March 2, 2011. My husband has severe short term memory loss and cognitive deficit-needs 24 hour supervision.

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