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mamacita3748's Recent CancerCompass Activity

  • mamacita3748 has replied to a post on the message board

    I'm having the opposite experience.  I had a full nephrectomy (stage pT3a, 5 cm)  7 weeks ago today and, since then, I have had anemia (18% iron saturation), daily killer exhaustion, brain for and have lost over 6% of pre-surgery weight, which I can afford. I'm starting on sunitinib in 2 days and facing the possibility of nausea, vomiting, diarrhea, mouth ulcers, and dyspepsia (among other much, much worse...

    September 02 at 7:29 PM view post
    • mamacita3748 has replied to a post on the message board

      Wow.  My creatinine jumped to 1.9 after my left kidney was removed in July, and has stayed there.  No one seems real concerned but it's now too high for contrast CAT and MRI scans which makes it harder to detect any cancer regression.  Just one more sucky thing on this pony ride from hell.

      September 02 at 7:12 PM view post
      • mamacita3748 has replied to a post on the message board

        Aside from the toxicity and cost of Sutent, I'm also concerned that the evidence that it is even effective is so very very weak.  Regardless, my husband and I have decided to proceed for as long as we can, given that there is absolutely no other alternative. These are 4 URL's  you can use to read the few studies/analyses that have been published with, sady, conflicting results.  Hope it helps: 1.&nbs...

        September 02 at 6:02 PM view post
        • mamacita3748 has replied to a post on the message board

          Another very real concern is the unbelievable cost of this med.  Really, Pfizer should be taken out and hung from the nearest tree as a highwayman.  I am currently on my husband's insurance from work and, since we've met all our annual out-of-pocket spending limits (for the first time ever, LOL), our copays for Sutent are $0.  The problem is that I'm aging into Medicare in November which is a whole dif...

          September 02 at 4:58 PM view post
          • mamacita3748 has replied to a post on the message board

            So sorry to hear what you're going thru tcain.  I find myself in the same difficult boat.  I was diagnosed on 6/26, full left nephrectomy on 7/22.  The pathology lab report after surgery upstaged my 5 cm clear cell tumor to stage pT3a based on two factors that make these tumors more aggressive - renal vein invasion and WHO/ISUP cell differentiation Grade 3. My onc has scheduled me to start on Sutent t...

            September 02 at 4:47 PM view post
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