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nyc212's Recent CancerCompass Activity

  • nyc212 has replied to a post on the message board

    Kit, Thanks for sharing.  I hope you remain on your current course, which seems good. So far, we have two different NO opinions:  (1)  Do chemo and proton radiation, and (2) maintain a "wait and see" vigil.  We are trying to sort out these obviously very different approaches.   Today, my husband mentioned he is starting to get headaches.  Not sure what this means.

    February 25 at 5:48 PM view post
    • nyc212 has replied to a post on the message board

      Franke, Thanks for your post.  I'm so glad to hear of your results. We will know more after the chemo/radiaiton plan after tomorrow's follow up visit with the neurosurgeon. Do you recall if you experienced significant fatigue and low stamina after your tumor surgery? Stay strong.

      January 31 at 3:44 AM view post
      • nyc212 has replied to a post on the message board

        Thanks Mike.  We are exploring various opprtunities in NYC and will keep in mind your advice.   So sorry to hear that some medical institutions have not been communicative in supportive ways. I do believe that environment and diet can affect one's well being.   Best to you. Isabel

        January 25 at 3:34 PM view post
        • nyc212 has replied to a post on the message board

          Thanks, Erik, for your very detailed explanation. My husband is 69 y.o., is a physician and Medical Director and has no intention of slowing down yet!  He's lost some weight due to the surgeries; down to 168 lbs.  Maybe we should fatten him up a bit in anticipation of the chemo/radiation. Do you understand how targeted radiation is?  Mark has already lost some eyesight due to glaucoma, and the tumor ...

          January 24 at 11:44 PM view post
          • nyc212 has created a new message board discussion

            This is my first post, here.  It looks like there are no recent oligodendroglioma postings, or else I am in the wrong place. In any case, I've read the comments from 2012 - 2014 and hope that the patients and their caregivers are thriving or in improved states. In December 2018, a brain tumor was spotted on my husband Mark's MRI which had been ordered for an unrelated reason.  In other words, Make had no s...

            January 24 at 5:04 PM view discussion
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            About nyc212

            Caregiver
            Brain Cancer
            Cancer Diagnosis, Cancer Nutrition, Chemotherapy, Radiation

            Wife to asymptomatic patient newly diagnosed with oligodendroglioma II.

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