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obiewon's Recent CancerCompass Activity

  • obiewon has created a new message board discussion

    Hi everyone I haven't been on this page in a very long time. Two years ago I gad brain and upper spine surgery. I was given almost no time to make a decision. My doctor had to operate because my brain stem was being crushed. Now I'm having trouble with pain because my chest and lungs can't expand. The pain really upsets me and let's just say I don't always feel like being social. My family is not very suppor...

    December 31, 2014 view discussion
    • obiewon has replied to a post on the message board

      My sister is really tired of hearing about the surgery. They want it to go smooth. Hell they have to pick up my skull and put it back in place. How do you predict anything will go well? Am I being selfish?? Or should I just die. I've lost more weight too. I'm very distraught because I've been yelling a lot. I can't comprehend having someone have to pick up my skull and put it back in place. But tod...

      June 22, 2012 view post
      • obiewon has replied to a post on the message board

        I am ready but I think others see that they will be inconvenienced. They want everything to go smooth. Sorry but this is brain and spine surgery. If my family isn't supportive I can't be positive because I have to worry about them. Right now I'm just pissed. Yea like I want this done. Feeling bad enough. I have the best doctors anyone could hope for. Obie

        June 16, 2012 view post
        • obiewon has replied to a post on the message board

          Haha I'm a girl!! What do I do though when my family isn't supportive! All of a sudden the phones aren't ringing. Do I give in? They don't want to believe what the doctors told me. Should I give in and just wait to see how bad I get so I don't "Ruffle feathers" Love Obie Yep im a girl When I was little I couldn't say Lorrie so it came out Obie. It stuck

          June 16, 2012 view post
          • obiewon has created a new message board discussion

            Im getting ready for spine/ brain surgery. I need to know how to get ready for this. If I do not have this. I'll be paralyzed from the neck down. Hoping to be strong emotionally.

            June 14, 2012 view discussion
            • obiewon has replied to a post on the message board

              Hi I don't have cancer but I'm facing a life threatening spine disease. I just got out of the hospital and you know No one wants to talk! They want to hear themselves talk. After I had all the surgeons tell me what they were going to DO to me during this operation which include a metal plate in my skull a feeding tube, taking bone out of my hip and the probability of infection I told them to go away. Of c...

              May 31, 2012 view post
              • obiewon has replied to a post on the message board

                Hi I never recall being hungry while on the feeding tube. I have no idea what solution they gave me but whatever they DID give me I usually threw it up. That plus I kept on losing weight no matter how much they increased the solution. The only thing I wanted was water by mouth. Everything including drugs went through the tube, And yes ginger ale fixed a clog tube. Best of luck Obie

                May 21, 2012 view post
                • obiewon has replied to a post on the message board

                  What if it clogs up the tube? If you put real food in it!

                  May 20, 2012 view post
                  • obiewon has created a new message board discussion

                    What is easy to eat when the esophagus has scar tissue around it. I'm losing so much weight. It's not due to cancer but issues in my cervical spine. I'm really trying to eat but it seems as if only Ensure does me any good. I ate yesterday and was sick all night.

                    May 20, 2012 view discussion
                    • obiewon has replied to a post on the message board

                      I wish they could really correct the spine issues. But my spine Dr says no. If I knew I could survive the surgery I'd try. But I think I would be crazy to try. Obie

                      May 08, 2012 view post
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                      About obiewon

                      Patient, Student
                      Esophageal Cancer
                      Spiritual Support, Acupuncture, Lifestyle, Diet, Genetics, Naturopathic Medicine, Physical Therapy, Supplements

                      Hi Everyone.
                      My name is Lorrie.
                      I am 52
                      In 1993 I was given a complete hysterectomy because they were worried about endometrial cancer.
                      In 1994 I was put on a regimen of meds that made my hair fall out. It was awful.
                      In 1998 They removed a lump from my breast. It was an odd looking thing that sort of branched out.
                      Doing okay.

                      I am looking for help dealing with chronic pain and the fatigue that comes with it.
                      We are trying to find a doctor to help control the pain, but my PCP doesn't want me to be on any long-term meds.

                      In 2007 during surgery my esophagus was torn and I spent three months in the hospital on a feeding tube.
                      It was quite the experience of wishing I had just died the night I became so ill.

                      I have always had hits and misses with odd things growing in me.
                      I lost a dear friend to breast cancer when she was fifty.
                      She was my sixth grade teacher. I loved her so much because I have cerebral palsy and she taught me so much about life and love.
                      Her anniversary is July 1st.

                      I think I am looking to help others if I can.
                      I understand fear and I also think before I act on going to a doctor- especially when I found my lump in 1998.'I thought I was imagining it.
                      I wasn't.

                      I enjoy movies, music and writing.
                      Love reading and movies too.

                      I have a degenerative spine disease which they have done all they could.
                      Great doctors who are honest.

                      This past fall the MRI showed that my skull was pressing on the brainstem.
                      The neurologist said I was going to probably die.
                      My surgeon. Just said he would not be a good doctor if he operated on me.
                      There have been changes in my condition but I'm not able to make a wise decision.
                      If anything happens ... It's because God knows better than I do.
                      I truly admire my surgeons honesty but knowing they can't do much is hard for me.

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