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ottoh's Recent CancerCompass Activity

  • ottoh has replied to a post on the message board

    the trial was the CMV trial and our Dr. Was Dr. Kameha. I hope I spelled his name right. He is in charge of the CMV trial. Hope this helps and best wishes!

    January 11 at 3:44 PM view post
    • ottoh has replied to a post on the message board

      Hi Fran. I know how depessing it is to hear your doctor give you their prognosis, but I'm here to tell you there are many more people who do much better than what their doctors say, my wife includes! This Christmas marks 2 years ago we discovered she had glioblastoma. She had surgery and it came back 6 months later to the same size. They told us that she had 4 to 6 months to live. We traveled from Duke university to ...

      December 31 at 9:21 PM view post
      • ottoh has replied to a post on the message board

        Sorry to hear you are having trouble slowing it down. You might look into CBDoil and THC oils. I believe they can help. Do some research and see what you come up with. Good luck and God bless you and your sister. Aloha

        December 21 at 5:23 PM view post
        • ottoh has replied to a post on the message board

          Katie,my wife has gone through two operations for GBM. We thought we were going to loose her as well. If your insurance will cover it, go to either MD Anderson, Duke University, Or UCSF. We have been to all three and it has been my experience that you need to go to the people who really know what they are dealing with. We are going in tomorrow for another MRI and I expect it will be a clear one. We found that the THC...

          December 04 at 8:59 PM view post
          • ottoh has replied to a post on the message board

            Hi Sue. My wife had stage4 glio. Had surgery Dec. 9 and grew back 6 months later to larger than before and had another surgery to remove. This last surgery was at UCSF and was the ALA-5 clinical trial. They inject you with a dye the glows floresnt orange when used under a black light. The idea is they get all the can during normal surgery, then they turn out the lights and use a black light that illuminates the tumor...

            November 16 at 3:26 PM view post
            • ottoh has replied to a post on the message board

              Hi John. My wife was diagnosed with stage 4 glio in Dec. 2015. She had surgery 9th od DEC, and it came right back. another surgery 6 months later. She was on Keppra for seizures and steriods. We had her take CBD and THC oils after her 2nd surgery while she was in a clinical trial at MD Anderson. We tapered her off both the Keppra and steriods as soon as they would let us and the CBD and THC oils helped her with her s...

              November 09 at 9:28 PM view post
              • ottoh has replied to a post on the message board

                Try researching CBD and THC oil . Nothing to loose and there are some very positive results. My wife is on them and doing well.good luck and God bless

                September 04 at 9:19 PM view post
                • ottoh has replied to a post on the message board

                  Hi. My wife was dx with GBM in 2015 and after her second resection we started using CBDs. We took he of Keppra and she is still on CBDs now and we have not had any kind of seizures. We feel the CBDs are working great, but can't be sure. Hope this helps a little. Taks care and aloha.

                  August 24 at 3:36 PM view post
                  • ottoh has replied to a post on the message board

                    My wife finished up with the CMV trial @ MD Anderson in Feb. and has had all clean MRI's since her last surgrey a year ago this month. In the trial, they filter out your T cells and genetically modify them to fight the genetics of the GBM. It seems to be working! She also was in the ALA-5 clinical trial@ UCSF with Dr. Burger. (best bet on surgery in my mind)There are a lot of clincal trials out there you just have to...

                    August 21 at 11:09 PM view post
                    • ottoh has replied to a post on the message board

                      Hi. This is a really tough thing you are going through and you will have to stay strong! I know that sounds pretty weak, but it's true. Just remember that what he says when he is in a bad mood, isn't a reflection of you, it's what the GBM is doing to his mind. Remember that he really does love you. I looked at it as a test from God when my wife would go off. I took it personally and then I would remeber that she was ...

                      August 21 at 10:57 PM view post
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