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reissens's Recent CancerCompass Activity

  • reissens has created a new message board discussion

    So at my last onc visit..did a scope and was NED...yesterday I found 2 lumps ,growths, under my tongue..were not there last month...i dont want to be that patient who freaks out but i am...they have grown in 1 month.. looks like SCC cancer pic ...but on dr google...just afraid of callin dr...

    Thursday at 4:29 PM view discussion
    • reissens has replied to a post on the message board

      When i got mine removed i was already for quick out patient proceedure...nurse came in ..prep me ..she deflated baloon and out it came...took 5 seconds!! Now my scar looks like Iron man arc reactor!!!  My wife says i am a superhero now..lol..  but we all are on here!!

      July 14 at 10:40 AM view post
      • reissens has replied to a post on the message board

        Congrats!!  That gives me hope! I am 10 months post ... struggling with side effects but I am pushing through one day at a time. It is because of people like yourself and every survivor on here that make us feel better about this terrible disease.  So glad for you!!!

        July 14 at 10:35 AM view post
        • reissens has replied to a post on the message board

          i am 9 months post treatment, ( 33 rads/7 chemo )  I say I have about 50 % of my taste back,  sweets are a no go which is probably a good thing... chocolate taste like wax!!! but I get by.  I try everything... anything is better than ensure!!!!! When I got my tube out trying food was great. You don't realize what you take for granted until you get through treatment and can't do the things you once did,...

          July 01 at 3:07 PM view post
          • reissens has created a new message board discussion

            Hell, I am 9 months post treatment from stage 4 tonsil canoer...33 rads/7 chemo...first scanNED??..for the last couple months i have been getting sores in my nose that just wont heal...they scab over then come right back..i know i  shouldnt worry because that doesnt get us anywhere...has anyone had any side effects like this??  One note...i read over my first PET scan and maxilary sinus showed concern docto...

            June 18 at 8:15 PM view discussion
            • reissens has replied to a post on the message board

              That is good info to know.

              April 12 at 5:23 PM view post
              • reissens has created a new message board discussion

                Hello, i am 6 months post treatment from stage 4 tonsil cancer...33 rads/7 chemo cisplatin...i have terrible peripheral neuropathy..taking gabipentin, glutamine,..nothing working..docs say they hope it will get better with time...or they say may never go away..how do you deal???

                April 10 at 5:23 PM view discussion
                • reissens has replied to a post on the message board

                  If I were you I would definately get a second opinion. I also had same diagnosis and it was HPV.. 33 rad and 7 chemo ..Tx ended oct 2017...first scan was NED... do your research on this sight...call more doctors...god bless

                  March 13 at 5:27 PM view post
                  • reissens has replied to a post on the message board

                    Everything you are feeling is normal. I am 4 months post treatment with stage IVA tonsil  +HPV, ( 6 cm tumor on tonsil with 2 lymp involvement >3 cm )  and my first scan was NED.  I too had 33 rounds of rad/7 chemo,  and yes treatment is hell, side effects are hell, and you will question on if it is worth it, I will not sugar coat this, it is so hard to get through it but you will. After, you w...

                    February 24 at 8:03 PM view post
                    • reissens has replied to a post on the message board

                      yes PEG tube is needed. I waited until week 5 of treatment,  lost 50 lbs, if I diddn;t get it I would not have made it through recovery.  Baking soda and salt swishes,  magic mouthwash , and water,  . It is hard this treatment,   ( 33 rads/7 chemo for me Stage 4 tonsil )  Eat as long as you atre able, I could not.  It was hell, treatment does work. I am 4 months post , first sc...

                      February 10 at 10:06 PM view post
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                      About reissens

                      Patient
                      Squamous Cell Carcinoma, Throat Cancer, Tonsils Cancer

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