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reissens's Recent CancerCompass Activity

  • reissens has replied to a post on the message board

    That is good info to know.

    April 12 at 5:23 PM view post
    • reissens has created a new message board discussion

      Hello, i am 6 months post treatment from stage 4 tonsil cancer...33 rads/7 chemo cisplatin...i have terrible peripheral neuropathy..taking gabipentin, glutamine,..nothing working..docs say they hope it will get better with time...or they say may never go away..how do you deal???

      April 10 at 5:23 PM view discussion
      • reissens has replied to a post on the message board

        If I were you I would definately get a second opinion. I also had same diagnosis and it was HPV.. 33 rad and 7 chemo ..Tx ended oct 2017...first scan was NED... do your research on this sight...call more doctors...god bless

        March 13 at 5:27 PM view post
        • reissens has replied to a post on the message board

          Everything you are feeling is normal. I am 4 months post treatment with stage IVA tonsil  +HPV, ( 6 cm tumor on tonsil with 2 lymp involvement >3 cm )  and my first scan was NED.  I too had 33 rounds of rad/7 chemo,  and yes treatment is hell, side effects are hell, and you will question on if it is worth it, I will not sugar coat this, it is so hard to get through it but you will. After, you w...

          February 24 at 8:03 PM view post
          • reissens has replied to a post on the message board

            yes PEG tube is needed. I waited until week 5 of treatment,  lost 50 lbs, if I diddn;t get it I would not have made it through recovery.  Baking soda and salt swishes,  magic mouthwash , and water,  . It is hard this treatment,   ( 33 rads/7 chemo for me Stage 4 tonsil )  Eat as long as you atre able, I could not.  It was hell, treatment does work. I am 4 months post , first sc...

            February 10 at 10:06 PM view post
            • reissens has replied to a post on the message board

              It's hard to say yes but the alternative is worse and I would rather be alive. When my onocologist said I  would go through hell I never thought I would actually go there. The darkness is so hard to come back from. You are not the same person both physical and mental...the Dr's don't tell you that, I am almost 4 months from last treatment. Everyday is a struggle, our bodies are destroyed and we have to rebuild t...

              January 28 at 10:20 PM view post
              • reissens has created a new message board discussion

                Just had my first PET scan post treatment...NED.. Great christmas this year.   Side effects are still with me but being all clear is great (stage 4a T2N2M0 SCC HPV) I have to admit i am doing okay considering. Treatment was hell, i did not think i was going to make it. 33rads/7 chemo.. but i did and im still alive.. hard to move on some days knowing that it could come back.. when you come so close to what f...

                December 21 at 5:16 PM view discussion
                • reissens has created a new message board discussion

                  I am just about 2 months post treatment stage 4 tonsil /33 rads 7 cisplatin.   Doing pretty well.. taste buds about 40 %  sore neck , fatiuge. But my hands shake alot now. Just wondering if this happens to anyone..i know its still soon but just wondering

                  November 20 at 5:24 PM view discussion
                  • reissens has replied to a post on the message board

                    Great news !!!  You give us all hope.  I am 1 and 1/2 months  out of Stage 4a tonils cancer,   7 weeks 33 rads/7 chemo and yes it was hell !!! But I am here !! I  got a feeding tube the last 2 weeks of treatment, I lost nearly 50 lbs and RO said I needed it to make it through recovery. she was right.  I have made tremendous recovery and now have not used tube in 3 weeks and I hope t...

                    November 10 at 7:57 PM view post
                    • reissens has replied to a post on the message board

                      I also had tonsilectomy when ENT  told me it was cancer, biopsy the tonsil, ENT knew it was cancer though,  next day confirmed,  SCC .  PET scan showed another tumor with lymphnodes.  onocologist said Stage 4a T2N2MO,  good news is ENT was right.  I'm 1 month from last treatment.  33 rads/7 chemo,  you are in the right place.  It is easy to be overwhelmed. I was, I gu...

                      November 06 at 8:19 PM view post
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