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reissens's Recent CancerCompass Activity

  • reissens has created a new message board discussion

    Just had my first PET scan post treatment...NED.. Great christmas this year.   Side effects are still with me but being all clear is great (stage 4a T2N2M0 SCC HPV) I have to admit i am doing okay considering. Treatment was hell, i did not think i was going to make it. 33rads/7 chemo.. but i did and im still alive.. hard to move on some days knowing that it could come back.. when you come so close to what f...

    December 21 at 5:16 PM view discussion
    • reissens has created a new message board discussion

      I am just about 2 months post treatment stage 4 tonsil /33 rads 7 cisplatin.   Doing pretty well.. taste buds about 40 %  sore neck , fatiuge. But my hands shake alot now. Just wondering if this happens to anyone..i know its still soon but just wondering

      November 20 at 5:24 PM view discussion
      • reissens has replied to a post on the message board

        Great news !!!  You give us all hope.  I am 1 and 1/2 months  out of Stage 4a tonils cancer,   7 weeks 33 rads/7 chemo and yes it was hell !!! But I am here !! I  got a feeding tube the last 2 weeks of treatment, I lost nearly 50 lbs and RO said I needed it to make it through recovery. she was right.  I have made tremendous recovery and now have not used tube in 3 weeks and I hope t...

        November 10 at 7:57 PM view post
        • reissens has replied to a post on the message board

          I also had tonsilectomy when ENT  told me it was cancer, biopsy the tonsil, ENT knew it was cancer though,  next day confirmed,  SCC .  PET scan showed another tumor with lymphnodes.  onocologist said Stage 4a T2N2MO,  good news is ENT was right.  I'm 1 month from last treatment.  33 rads/7 chemo,  you are in the right place.  It is easy to be overwhelmed. I was, I gu...

          November 06 at 8:19 PM view post
          • reissens has created a new message board discussion

            I am 1 month out from treatment for stage 4 R tonsil cancer ..radical tonsilectomy/ 33 rads/7 chemo...  doing well.   Everyday i get a little better... hoping to get feeding tube out in 2 weeks....eating although taste buds not there but thank god i have a little...trying all foods...pet scheduled for december 23.  Hope it will be good christmas news... will never forget the hell i went through bu...

            October 30 at 4:24 PM view discussion
            • reissens has replied to a post on the message board

              Dr did say would get worse before its better.. this first 4 days are not fun... im using tube .. doin ensure.. hard to drink by mouth .. but trying stay positive.. just want normal back but i know it will take time.. thanks for all kind words... 

              October 06 at 12:17 PM view post
              • reissens has created a new message board discussion

                Rang the bell monday 10/02/17-    stage 4 scc tonsil +hpv-  33rads/7 chemo.  Felt so good to get thru it... got feeding tube last week... hard but gonna get me thru recovery... lost about 50 lbs..  now the recovery starts.. i know i can get thru it.. 

                October 04 at 4:44 PM view discussion
                • reissens has replied to a post on the message board

                  Thanks for your good thoughts... even drinking the ensure is getting hard...i have been trying so hard but at my end i think.. but just trying to not have to have a peg

                  September 12 at 5:50 PM view post
                  • reissens has replied to a post on the message board

                    Half way through..  hangin in there..rad effects are here.. chemo is the worse..getting fluids once a week now.. getting very hard now..no peg yet but dr said one more week.. cant eat.. just ensure..im trying..harder days coming i know

                    September 12 at 5:13 PM view post
                    • reissens has created a new message board discussion

                      I am half way through.  17 of 33 rad 4 of 7 chemo.  Stage IV SCC T2N2bM0 +HPV ,  Chemo has been the worst for me . I just got my first fluids yesterday with extra nausea meds to helo. Rads effects are here but not full force yet, some mucus, raw, swalliw ok right now, tastebuds gone, no feeding tube but i think that is coming cause cant eat anything but watermellon, no appitite. Have lost 17 lbs, Dr sa...

                      September 09 at 8:26 AM view discussion
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