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rfrenchrn's Recent CancerCompass Activity

  • rfrenchrn has replied to a post on the message board

    My boyfriend has brain mets with 8-10 small tumors.  We did WBR and started zelboraf immediately.  In May we had our first MRI and PET.  Brain lesions had shrunk with no new lesions sited.  All tumors in the body were gone.  We started zelboraf in Feb. so it was about 10 weeks on the zelboraf.  We are continuing to take it but have decreased the dose.  We started on the max dose. &n...

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    • rfrenchrn has replied to a post on the message board

      Thank you for the info.  His original site was a mole on the back that made it to the lymph nodes.  He had radiation and chemo at that time and was cancer free for 11 months.  The second origin was the right kidney.  He had the kidney removed in Jan and after the MRI and PET we found out he had mets to the brain and soft tissues in the body.  He has been on zelboraf since Feb 19th. ...

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      • rfrenchrn has created a new message board discussion

        My boyfriend who is 35 years old was diagnosed with stage 4 metastatic melanoma with mets to the brain.  After whole brain radiation we started on zelboraf and have been on it for 2 months.  Would appreciate any comments, side effects.  Since this is a new drug there is not alot of info out there.  God bless to all and thank you in advance.

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        • rfrenchrn has replied to a post on the message board

          My boyfriend has been on zelboraf for 2 months.  We started on 8 pills a day.  Some of our side effects include rashes, joint pain, low grade fever, hoarseness and loss of taste and unsteadiness.  I hate to sound so negative but we have seen knots that were noticeable to the eye disappearing.  We have decreased dose to 6 pills aday to try and ease some of the side affects.  Please contact me ...

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          • rfrenchrn has replied to a post on the message board

            My boyfriend was diagnosed with Stage 4 Metastatic Melanoma with mets to brain in Jan 2012.  We have also had whole brain radiation.  We have started on a new chemo drug called zelboraf which he takes orally twice a day.  Where did your husbands melanoma originate?  Ours started with a mole on the back which made it to the lymph nodes in 2010.  After radiation and chemo at that time we were c...

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            About rfrenchrn

            Caregiver, Nurse
            Melanoma
            Cancer Treatments, Chemotherapy, Clinical Trials and Research, Emotional Support, Side Effects, Spiritual Support

            My name is Rachel and my signifcant other has just been diagnosed with metastic melanoma. He is 34 years old. Looking for any advice, opinions, ect. Thanks

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