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rrlom's Recent CancerCompass Activity

  • rrlom has replied to a post on the message board

    Hi Christer, I am not able to send you a private message. What I wanted to tell you is that after almost 3.5 years, my father is still alive. He is greatly affected by the cancer but what is important is that he survived.  A bit of background. We are in Toronto and he was treated at Princess Margaret hospital. His MRIs have dropped down to once a year or once every several years - so I think we can consider hi...

    March 19 at 9:46 PM view post
    • rrlom has replied to a post on the message board

      Hi everyone, I like doing some updates to give others facing similar situations some information. I wish I had better news but my father had another round of necrosis. This time the necrosis was bad. He is in heavy steroids again. His cognitive abilities and some basic functions like bladder control has been affected. What's worse is that he has steroid side effect where he has been unable to move around easily indep...

      December 27, 2015 view post
      • rrlom has replied to a post on the message board

        Oh the original tumour no longer shows up on the MRI - so we are very happy about that as well. His final diagnosis was PPTID grade 3.

        February 13, 2015 view post
        • rrlom has replied to a post on the message board

          Hello, this is an update to my dad's situation. He had a biopsy 3 weeks ago to investigate the new growth. It turned out to be radiation necrosis - approximately 2cm in size. The doctors are very happy and they tell us it is in a quiet part of the brain. In the mean time, dad is on steroids. He seems to be doing ok - his short term memory is worse than before but still ok. Steroids are causing some insomnia - whi...

          February 13, 2015 view post
          • rrlom has replied to a post on the message board

            Thanks everyone. Unfortunately we have bad news again. My fathers original tumour is no longer visible on the MRI but he has a new growth. It has been a devastating blow. We don't know what will happen next but I think we all know that recurrent tumour is worse news. Yet, here we are. Starting the battle once more. My dad survived one year in good health and got to see his new grandson. Here is hoping for one more...

            January 08, 2015 view post
            • rrlom has replied to a post on the message board

              I wanted to share an update. My father went through radiation treatment. And had two follow up MRIs. Both showed decrease in the tumour mass - approx 50% each time. We are so grateful and still hoping for the best. It has been exactly one year since dad's diagnosis. So far so good.

              December 03, 2014 view post
              • rrlom has created a new message board discussion

                 Hi there, My father was diagnosed with a PPTID (Pineal Parenchymal Tumour of Intermediate Differentiation - Grade III). It is a very rare tumour and the oncologist did not offer any treatment beyond radiation. Does anyone have any experience with this tumour type? Can you point me to any studies or researchers who have administered chemo treatments in addition to radiation? Thanks!

                January 22, 2014 view discussion
                • rrlom has replied to a post on the message board

                  Hi there, I'm so sorry to hear about your mom. My father was recently diagnosed with a brain tumor as well - but so far it appears to be a very rare Pineal region tumor. We don't know much yet. Our experience is not the same as yours. But I just wanted to wish you good luck.

                  January 19, 2014 view post
                  • rrlom has created a new message board discussion

                    Hi there Our family brain tumor journey stared Dec 2013. My dad, 60 and in good health have been suffering from what we thought was depression and short term memory loss since the summer... Maybe even earlier- it's hard to say. He had a CT scan Dec 6, which showed a tumor and some hydrocephalus. The first neurosurgeon who saw the CT scan said that it looked like a benign tumor that has been growing for years. Th...

                    January 14, 2014 view discussion
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