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sguerra47's Recent CancerCompass Activity

  • sguerra47 has replied to a post on the message board

    Okay.  I will pass this on.   I have seen many survivors of the original Interleukin II drug - I am not seeing as many (in my group of friends) who are surviving this advanced disease.  I have had two other friends die (young) of Melanoma in the past two years.  This is my 3rd friend to get this disease.  I am very worried about her.   Yes, prayers are important.   Th...

    November 11 at 7:16 PM view post
    • sguerra47 has replied to a post on the message board

      She goes to the Cancer Center in St. George UT at the moment.   Wouldn't those doctors be able to find the clinical trials at UCLA, or do you have to go to  UCLA to do them?   Thank you so much for responding.

      November 10 at 2:20 AM view post
      • sguerra47 has replied to a post on the message board

        She has only done Yervoy and Optivo - we are in Nevada.

        November 10 at 2:16 AM view post
        • sguerra47 has replied to a post on the message board

          My friend is doing worse.   She had a recurrence in her lymph node while on Octiva -- they removed it.   She has three tumors in her lung.   She does not have the BRAF mutation so no help there.   She did the new drug treatments in the beginning and that is when the cancer spread to her lungs and the side effects were so bad she had to quit yervoy.   Any suggestions?

          November 08 at 5:31 PM view post
          • sguerra47 has replied to a post on the message board

            I have a friend with Stage 4.   Original lymph node removed, unknown primary, 3 small tumors in lung, and now a new lymph node has appeared near the original spot.  She could only do two yervoy, and she has done quite a few Obdivo, but these tumors have grown while on that drug.  Any suggestions?

            September 20 at 4:10 PM view post
            • sguerra47 has created a new message board discussion

              My friend had Melanoma spread to 1 lympnode.  That was removed.  She tried Yervoy, she could not handle more than one treatment due to side effects.  She had to do nothing for a couple of months while she recovered.  Her next PET scan showed tumor on lungs, she did radiation.  And three months ago started Opdivo every two weeks.   She had her new PET scan and its showed grown in the...

              July 11 at 9:04 PM view discussion
              • sguerra47 has replied to a post on the message board

                Yes it does seem like you caught this early.  However, just remember that the tonsil is an organ and the lymph nodes are considered an organ, so you have a dangerous cancer - never forget that and do all you can.   In my opinion, and from what I have seen, the more aggressive you are able to be in your treatment, although it can be miserable, the better outcome you can have.   Ask your doctor...

                June 21 at 7:42 PM view post
                • sguerra47 has replied to a post on the message board

                  It is a matter of life and death.   There is a very great risk of your cancer spreading through the blood stream if you postpone your chemo and radiation.   The surgery part of your treatment only gets the localized cancer than can be seen by eye and PET scan.   Those other cancer cells looming around (and there can be lots of them) can and will travel through the blood stream making you...

                  June 21 at 7:14 PM view post
                  • sguerra47 has replied to a post on the message board

                    I am so sorry this is piecemeal information.   I am very certain that if you live near a Cancer Center, you should absolutely choose to be treated at that kind of facility.  Like Cancer Centers of America, for example.   Check what is near you locally if anything, or how far you would have to go to one.

                    July 30, 2017 view post
                    • sguerra47 has replied to a post on the message board

                      I said BRAT in my earlier response, that was not correct:  This is correct: Recent studies show that cetuximab and panitumumab do not work as well for tumors that have specific mutations, or changes, to a gene called RAS. ASCO recommends that all patients with metastatic colorectal cancer who may receive anti-EFGR therapy, such as cetuximab and panitumumab, have their tumors tested for RAS gene m...

                      July 30, 2017 view post
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