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shanie1017's Recent CancerCompass Activity

  • shanie1017 has replied to a post on the message board

    Hi.  How is your dad?  

    December 07 at 10:00 AM view post
    • shanie1017 has created a new message board discussion

      Hi.  I'm wondering what your experience has been with the accuracy of MRI results.  My dad was diagnosed with bile duct cancer in October 2016 and has been on chemo since January 2017.   During the first 6 months (from October 2016 to March 2017), his tumor size remained the same.  He's been getting an MRI every few months, and according to the MRI results, the "mass" is nearly doubling in si...

      December 07 at 9:56 AM view discussion
      • shanie1017 has replied to a post on the message board

        Hi.  My dad (74) was diagnosed with bile duct cancer in October 2016.  He's been treated at UCLA.  Although this type of cancer is rare, I think the doctors at UCLA have been doing their best.  He sees an oncologist and gets his biliary drains exchanged every two months (sometimes, every few weeks) by the inteventional radiology department.  Also, bile duct cancer is volatile with many ups an...

        December 07 at 9:33 AM view post
        • shanie1017 has replied to a post on the message board

          Hi.  I'm very sorry to hear about your dad.  My dad was diagnosed with bile duct cancer (cholangiocarcinoma) in October 2016.  He's between Stage 2 and 3 with no mestastasis.  Surgery was not an option because his tumor is in a bad location.  It's been very difficult with severe ups and downs.  The biggest problem has been weight loss, weakness, and lack of appetite, which leads to even ...

          December 07 at 9:03 AM view post
          • shanie1017 has replied to a post on the message board

            Hi.  I can totally relate.  My dad was diagnosed with bile duct cancer in October 2016.  After feeling weak and having a low appetite for several months, he suddenly developed jaundice one morning, so we took him to the ER.  After numerous tests, he was diagnosed with bile duct cancer.  We never got the exact staging information yet, but we think it's Stage 3 (the cancer has spread to the lym...

            February 16 at 9:05 AM view post
            • shanie1017 has replied to a post on the message board

              Hi.  My dad was diagnosed with bile duct cancer in October.  We don't have the staging information yet, but we believe it's either Stage 2 or 3 (spread to the lymph nodes, but not to any other organs).  The tumor is 1.2 cm.  Initially, the doctors said they were going to look into the possibility of removing it by surgery, but more recently, they said that the best way to treat it would be through...

              November 28, 2016 view post
              • shanie1017 has replied to a post on the message board

                Hello.  I'm so sorry to hear about your dad.  My dad was just diagnosed with bile duct cancer in October.  We don't have the staging information yet, but we believe it's either Stage 2 or 3 (the cancer has spread to the lymph nodes, but not to any other organs).  We'll find out more once he begins to see an oncologist, but so far, he's been in and out of the ER.  He suddenly developed jaundic...

                November 28, 2016 view post
                • shanie1017 has replied to a post on the message board

                  Wow.  Congratulations, and thank you for your inspiring message.  It's very nice and helpful to read a postive story about a bile duct cancer survivor.  Most of the stories that I've read about this disease have not been positive because the disease itself doesn't usually present any symptoms until it's already advanced. My father was diagnosed with bile duct cancer on 10/21/2016.  We don't have ...

                  November 28, 2016 view post
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