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shucky's Recent CancerCompass Activity

  • shucky has replied to a post on the message board

    I had a GBM in October 2011. Surgery, radiation and Temodar from 2011 until January 2014 when tumor returned. It was inoperable so did cyberknife. Started Avastin every two weeks in January. Only side effects that I had was being very tired. My blood counts stayed in normal range. Tumor returned in June. I am now out of options and on Hospice.

    August 27, 2014 view post
    • shucky has created a new message board discussion

      I am a 74 year old male, dx October 2011 with a GBM in left frontal lobe. Had surgery then radiation and Temodar and then Temodar on the 5/28 cycle until January 2014 when a tumor was discovered deep in the brain. Because it was inoperable, had stereotactic radio surgery (like cyber knife). I am now doing infusion of Avastin every other week along with magnesium. I am becoming weaker, memory is going and I can't seem...

      May 23, 2014 view discussion
      • shucky has replied to a post on the message board

        I tolerated temodar very well other than being tired. I am hoping my extreme tiredness, dizziness and disoriented is from the radiation and not Avastin. I am also having extreme diarrhea. It just seems like such a chore to get up for another day.

        March 02, 2014 view post
        • shucky has created a new message board discussion

          I have been on Temodar for 25 months but GBM just came back. Did stereotactic radio surgery (Cyber Knife) and now doing Avastin. Have had 3 infusions two weeks apart. I feel like I am drugged -- very tired, weak, disoriented. Anyone else have these symptoms from Avastin or is it side effects from extreme radiation surgery. Any insight is helpful

          February 25, 2014 view discussion
          • shucky has replied to a post on the message board

            I am 2 years with out a recurrence and just had a clean MRI but am having some dizziness and weakness. I have a GBM IV in left frontal lobe and am 73 years old. May I ask what stage and how old you are? My NO keeps saying she is surprised I have done so well but always like to hear success stories from someone my age with a similar tumor. Thanks.

            October 21, 2013 view post
            • shucky has replied to a post on the message board

              Thanks for input. I have not had any vomiting but have severe bouts of diarrhea that come on very suddenly. I am so very, very tired and just have to force myself to do anything besides sleep. I start Temodar again in a week and it is scary as I am always very tired then but it seems I just don't bounce back after treatment like I used to. Don't know if it is a build up???

              May 27, 2013 view post
              • shucky has created a new message board discussion

                I haven't been on for some time but I am 73, diagnosed with left frontal lobe GBM in October 2011, had surgery, radiation and chemo. Am now on 28 day temodar treatment. I am extremely fatigued. I have an MRI every two months that has been clear but had swelling so was placed back on steroids which made blood sugar go out of control. Am tapering off steroids so sugar is better but now have dangerously low magnesium. D...

                May 25, 2013 view discussion
                • shucky has replied to a post on the message board

                  I Had urgery in October of 2011and in November I did 30 doses of radiation with Temod4. Now I take 300 mgs of Temodar for 5 days every 28 days. It is strange how bad and fatigued you feel one day, then better the next and then bad again. thanks.

                  March 17, 2013 view post
                  • shucky has created a new message board discussion

                    I was diagnosed with GBM 10/11 so have been living with this for 18 months. Had surgery, radiation and now Temodar every 28 days. I am 73 years young. The last few days my legs have just not wanted to hold me up and one leg is numb. It has been fairly numb since surgery but now has almost no feeling so balance is way off. I just kind of shuffle with that leg. Also have such a hard time staying awake and have slept pr...

                    March 17, 2013 view discussion
                    • shucky has replied to a post on the message board

                      How old are you? I am 72 and am in my 14th month.  Was told average for my age having gbm iv is 14 to 18 months but am doing well other than being tired, balance and memory issues. Age seems to play an important part in long term survival. Best wishes.

                      November 16, 2012 view post
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                      About shucky

                      Patient
                      Brain Cancer
                      Cancer Treatments, Chemotherapy

                      I had surgery in Oct 2011 for glioblastoma multiforme stage IV. I have had radiation and now am taking Temodar monthly. MRI s have been coming back with no new growth. I am 72 and surgery affected right side with balance, coordination, eye sight and have some memory issues.

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