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survivorliver's Recent CancerCompass Activity

  • survivorliver has replied to a post on the message board

    Mari, its hard to be a caregiver and more marriages/relationships change/end because of cancer. Try to get a caretaker from a state agency, and then just be there for doctor visits and to make sure your mother is getting the proper care from the caretaker. It will ease your burden and help your mother...some things children should not see/do unless they are older. You have college to prepare for and to attend. You ca...

    September 17, 2018 view post
    • survivorliver has replied to a post on the message board

      A good hot beverage or hot noodles helps the chills. Its been 4 mos for me and I am not having them as much, but a good electric blanket works wonders even in the summer. I just slept almost around the clock for 4 months and feel better. I dont have a thick white glow around me, and I just was able to spend more than 8 hours up with less than 8 hrs sleep AND be able to function!!!

      September 17, 2018 view post
      • survivorliver has replied to a post on the message board

        My doctors were very strict about no fresh fruits or veggies, no fresh anything. Flash frozen everything. The flash freezing keeps the good properties fresh and still kills off the bacteria that can kill us, while the natural enzymes are frozen so fast that they retain their natural state. I was teri 13.19 for 16 years, so sick I could barely function and was NED May 24, 2018. Also no detoxifying foods or preps, noth...

        September 17, 2018 view post
        • survivorliver has replied to a post on the message board

          Oh, I am feeling better. I worked on my own computer and got it set up correctly with updates and all (Windows 10), and I was able to stay up all night two nights in a row this weekend. I usually don't, although I can't sleep either because there's a bright light behind my eyes and usually I have to about pass out in order to sleep, from tiredness. And I wake up saying incredibly stupid things just a tirade of stupid...

          September 17, 2018 view post
          • survivorliver has replied to a post on the message board

            You are still tired 10 years later? I thought I was a horrible laggard for sleeping almost around the clock for the past 4 months after getting an all clear in May, although people say they can see a good difference between before and after. I certainly plan on getting a life worth enjoying back, and I don't really want to be tired all of the time while in persuit of the American Dream, again. I really hope that the ...

            September 17, 2018 view post
            • survivorliver has replied to a post on the message board

              Update. I am NED as of May. I was working when I got my NED, I had just been hired about two weeks before my NED. I started feeling like I was still on chemo and so tired. I had to quit job and just sleep for 4 months. I was scared to death my cancer was back. I am looking better, the white glaze around me is receeding and I am looking almost normal. I stayed up all night for the first time without feeling "loose" or...

              September 17, 2018 view post
              • survivorliver has replied to a post on the message board

                I had liver cancer and my doctor advised me to stay 6 ft away from people for a couple/few days not because of radiation, but because I was on chemo pills and my immune system was down, my platlets were not forming fast, and I was bruising easily. I couldn't go off chemo because I would subcumb to the cancer and I really wasnt ready to die. It was hard because I was working at the time, and I did have to quit, but I ...

                September 17, 2018 view post
                • survivorliver has replied to a post on the message board

                  Liver cramps. Ouch they hurt. Mine went out more painful than they came in, you're lucky you had pain. Follow Dr instructions, stop smoking. stop drinking alcohol, energy drinks and white/green teas. Lemon water lubricates the liver. I have an unremarkable liver, thanks to a healthy cancer pool set up by friends and 16 yrs of dedication by doctors and researchers.  

                  July 19, 2018 view post
                  • survivorliver has replied to a post on the message board

                    OOOPS, wrong person. I appologize ZippyBeta. I just won a very long, very expensive, very traumatic fight with cancer. Most vets will say dog/cat cancer is not the same as people cancer anyway and can back it with research.

                    July 19, 2018 view post
                    • survivorliver has replied to a post on the message board

                      Your dog???? I am sorry,sweety, for your DOG, but come on and get real. PEOPLE are struggling with the financial strains of chemotherepy and bloodtests and really really expensive tests, nausea, trying to eat and sleep and trying not to DIE!! and you are blathering on about a dog and trying to get sympathy and be a cancer survivor for a DOGGG!!! ZippyBeta, go away,babe, find a sympathetic veterinarian and a sympathe...

                      July 19, 2018 view post
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                      About survivorliver

                      Survivor
                      Liver Cancer
                      After Treatment, Diet, Side Effects, Support

                      I was diagnosed with liver cancer in 3/2002. From there things get a little foggy because I was Very sick(ill) and terminal 30 days at a glance. This is just a synopsis as I recall, not from the medical standpoint, up until May 2018. I had just graduated from college with a 3.85 AAS legal secretary degree at age 42, and landed my first break through job. I noticed my thinking wasn't clear, I am sure that I was doing my job well, but I was asked if I want to apply for Soc Sec by one of the partners but my boss stood up for me . My roommate needed a full blood test by a gastrologist in March 2002. He was special needs and refused to go unless I went. 2 days after the test Dr called me in and told me I had liver cancer and about 30 days to live. He started me with another doctor on a drug test trial. We started with Pegasus, which does not work by itself with liver cancer but helps with another chemo. In May of 2003 we moved to Illinois for another drug trial, in May of 2005 there was no change and I was told to go home and say goodbye, and to tell the family it was hep C. In 2007 I rcvd email to go to Milwaukee WI if I still lived. In 2007 a doctor said my cancer test was more neg than pos, in 2008 it was noticed by a visiting oncologist, 2009-2012 really no care I am aware of. 2012 a dr said it was hep C, the town health dept came out and did a wipe down of apt (hep C is contagious) and found no sign of hepatitis. in 2013 I was turned in for soc sec fraud and started a new round of test drug. In 2014 a new test drug came out, and had to be cleaned out of the system a year later. in 2015 a new drug came out and off to the races again. In the next few years new drugs came out, but not the magic little liver pill. Finally in 2017 the magic pill came out. In May of 2016 my first good blood test since 2002, except the number series. In January 2018 my doctors gave up on me, even though my blood tests were still good. I continued chemo (the magic pill I had held onto life to take for years and years) although the drs had pretty much started cleaning my case files up and getting me ready to die. On May 2, 2018 my bloodtests came back very good. May 14 my blood tests were better. May 24 I had my CT and it came back NED. :) I had just joined the smallest survivor group of cancer survivors. Without breaking the liver sac, no transplant, the biopsy caught a tumor just outside the liver sac, I am LUCKY LUCKY LUCKY. And ALIVE.

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