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suz222's Recent CancerCompass Activity

  • suz222 has replied to a post on the message board

    You guys rock.  Hope he has a wonderful time in FLA.  Us guys, we're in Canada so enjoying our first few weeks of Spring.

    May 17 at 3:40 PM view post
    • suz222 has replied to a post on the message board

      Laugh Out Loud!!!  Thanks Léon! My son is scheduled for his next scan in early July and I was just looking at a calendar to see if I should start agonizing now or perhaps wait a week. All kidding aside, it's something you learn to live with and it certainly helps hugely to focus on the things that count.  Check ups are stressful though.  Best wishes that yours is smooth as silk.

      May 17 at 3:19 PM view post
      • suz222 has replied to a post on the message board

        So glad to hear Mike's son is doing so well after the procedure.  Best wishes that that's his new normal.  As for Mike and surgery - there are some wildly talented surgeons out there.  A second opinion is always valuable.

        May 16 at 8:23 PM view post
        • suz222 has replied to a post on the message board

          Thanks for the update!  My son is the one with the stage 2, diffuse astrocytoma, triple negative.  He was diagnosed just shy of 6 years ago.  He did have a successful awake craniotomy 6 months later.  Outcome was a sub total ressection.  About 90% of his tumour was removed.  No follow-up chemo or radiation - it wasn't the protocol in those days.  He sees a neuro-oncologist every six...

          May 16 at 6:41 PM view post
          • suz222 has replied to a post on the message board

            The entire IDH wildtype or mutated is of great interest to specialists and researchers.  Particularly for diffuse stage 2 astrocytomas.  Consider this - anyone without a brain tumour is IDH I and II wildtype.  One would have to assume that wildtype offers a survival advantage.  True, the tumor is not as responsive to medication but perhaps that's because it's more indolent.  Dr. Hugh Duffau -...

            March 26 at 8:07 PM view post
            • suz222 has replied to a post on the message board

              Hi Dodger: That was the perfect  answer!  The only thing anyone can do is live their life -  as fully as possible.  No one can know the future and the only thing we can control is how we make the journey.  It's really difficult to not worry but worry will not impact prognosis or outcome.  Worry is a thief that steals time. Best wishes to all. Suz

              November 06, 2015 view post
              • suz222 has replied to a post on the message board

                Your story is very inspiring.  May I ask if you had a total ressection? Wishing you continued good health! Susannah

                February 12, 2015 view post
                • suz222 has replied to a post on the message board

                  Hi Elliehop: My son was incidentally diagnosed with a grade 2 astrocytoma about a year and a half ago.  Because he had no symptoms, we we were able to carefully research out options.  We chose to go with surgery at UCSF and a NO at home in Canada. Where was your son's tumor located?  Was it a total or partial ressection.  Second opinions are valuable. Know that his age is a fantastic prognostic...

                  November 22, 2013 view post
                  • suz222 has replied to a post on the message board

                    Hi Kristy: My husband's situation was very similar to yours.  Diagnosed with stage 3 colon cancer at 48.  Had a resection and 7 of 11 lymph nodes testing malignant.  Follow-up with both chemo and radiation.  Approximately 6 months later, a metastisis was found in his liver.  Now he was considered a stage 4. Had a liver resection. The good news is that this was more than 10 years ago!  ...

                    September 09, 2013 view post
                    • suz222 has replied to a post on the message board

                       Sorry, I posted twice by accident.

                      March 16, 2013 view post
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