Loading...

tomformum's Recent CancerCompass Activity

  • tomformum has replied to a post on the message board

    Hey Rich,Thanks for your kind words. My family and I are so grateful for all the help and support you gave us over the last year. What you're doing for people with GBM is incredible, so again, thank you from the bottom of my heart. Hopefully we can meet at some point so I can buy you a beer and thank you in person :-) Tom

    September 01, 2014 view post
    • tomformum has replied to a post on the message board

      Hi guys,Just to update you all...sadly, mum passed away last month. Her last scan came back showing her tumour had grown in 3 places. She died peacefully in her sleep several weeks later. I believe things went wrong because mum couldn't tolerate the temezolomide. Even though she was following a cocktail treatment, I'm given to understand that without the chemo aspect, it doesn't really help all that much. She only m...

      September 01, 2014 view post
      • tomformum has replied to a post on the message board

        We use Avoclor... http://www.antimalariatablets.co.uk/malaria-tablets/malaria-medicine-cholroquine-avoclor/ When you order if they ask where you're going (they're malaria tablets) say somewhere in the Carribean. I said Haiti as some parts of the world they'd want to give you a different drug.

        May 11, 2014 view post
        • tomformum has replied to a post on the message board

          Hi P, My mum's been on chloroquine + DCA and many other cocktail drugs for a while now (though not avastin). As far as I'm aware, you shouldn't have any interactions adding it to the mix. Tom

          May 11, 2014 view post
          • tomformum has replied to a post on the message board

            Hi guys, I realised that it's been a while since I updated everybody on mum's journey, so here goes... She's still here :-) We've had a real rollercoaster over the last few months. After mum's second round of chemo in December, she became extremely ill, pretty much bed-ridden, which the oncologist put down to the chemo being at too high a dose. Her first round was a 75% test dose, with December being the full 100%...

            May 02, 2014 view post
            • tomformum has replied to a post on the message board

              Hi there, Just be clear, she HAS had one radiotherapy and two rounds of chemo + the cocktail drugs.

              January 21, 2014 view post
              • tomformum has replied to a post on the message board

                Hi Audrey, Order this book... http://www.amazon.com/Surviving-Terminal-Cancer-Treatments-Oncologist-ebook/dp/B00FDWPQWC/ref=sr_1_2?ie=UTF8&qid=1390321759&sr=8-2&keywords=ben+williams ...it will tell you most of what you need to know, then come back and re-read this whole thread and it will know everything you need to get started.

                January 21, 2014 view post
                • tomformum has replied to a post on the message board

                  Thanks Rich, We're going to go all out for the low daily TMZ dose next time we see the onco. My whole family is on board with that, so we're pretty much gonna insist, that that's what happens. We'll have to see what response we get. Mum's been on omeprazole from day one, so that's good to know. We'll be starting her back on cannabis oil today, so that's good. I'll also double mum's Celebrex dose and see how she fa...

                  January 21, 2014 view post
                  • tomformum has replied to a post on the message board

                    So we got our MRI results today. As it stands we're in pretty much the same position we were in with the baseline scan back at the beginning of November. The area where the tumour was taken out is healing nicely, though he says there is a tiny piece of remnant tumour which hasn't grown, but is showing "signs of activity." Considering that's after 2 rounds of chemo, with mum missing the 3rd round at the beginning of...

                    January 21, 2014 view post
                    • tomformum has replied to a post on the message board

                      Not sure, how long it will be. The scan is Monday 20th, then I think we'll have a couple of days until we get the results. They just phoned us last time. Next week is going to be a tense one. Wishing you the best of luck. I hope we both get the results we're hoping for :-)

                      January 15, 2014 view post
                      Loading...
                      Load more activity
                      Loading more activity

                      About tomformum

                      tomformum has not shared any information about themselves. Send them a message to tell them you'd like to find out more about them or add them as a friend.

                      We care about your feedback. Let us know how we can improve your CancerCompass experience.