tromda's Recent CancerCompass Activity
-
Hi Jenny
Like the other posters, I echo the sentiment 'do not give up hope'. I'm sure you probably saw the 60 minutes segment on GBM Sunday. There is definitely hope.
Anyway, you asked about Radiation and if makes a difference where to go. If I were to do it over again, I would check out anyplace that has Proton Radiation therapy. There is one at the Seattle Cancer Center. ...
March 31, 2015
view post
-
Hello, Melanie
I am sorry for your situation and also feel bad about the lack of Hospice Services for your husband and you. I agree with The other poster about contacting Social Services in your County and asking how to get Hospice Services in your home. If you decide to keep him in your home, you will need assistance. And, please don't beat yourself up if you decide to move to in patient Hospice Care. It isn'...
March 16, 2015
view post
-
Hi Julia....your post touched me. There is always hope, so don't ever think that there isn't. There are many people on this board that can attest to that. I know how hard the holidays are, and I'd like to share a bit of advice that someone gave us...Don't go into the holidays with the thought of, "this could be our last holiday together". Just enjoy them as you always hav...
December 08, 2014
view post
-
Kat, you have a beautiful attitude. Embrace the day.
November 23, 2014
view post
-
Yes....I am learning to do things I never thought I would be doing. In just the last week, i replaced a light fixture and fixed a leaky toilet. I have to admit that YouTube is now my best friend.
My husband was a farmer and loved Fall and harvest time....it makes me miss him all the more. But, I think he would be proud of the things I've learned to do.
October 29, 2014
view post
-
I had kind of a hard time reading this story. I am in awe of her courage and grace. At first I struggled with how her family will feel after she is gone. We were so blessed in that in the 31 months that my loved one survived, we were able to make many memories and as a survivor I am deeply grateful for that. But this young woman appeared to have lived an unusually full and joyful life in her short time on earth...
October 24, 2014
view post
-
As hard as this is for all of us, it must be especially hard for you. You didn't even get a chance to adjust to the disease when her rapid decline began. Hang in there Buddy...know that you did everything possible.
October 24, 2014
view post
-
Mollie
This needs to be monitored. The aggression probably will not get better until the dose goes down. Do you have someone there with you? Please call your doc and let them know of the aggression. Good luck
October 05, 2014
view post
-
Hello
It totally sucks about your brother and all the run around you have been getting.
I kind of hate to offer an opinion because everyone's circumstances are just so different, but if your brother is willing and able, I would stick to a medical center that is rated high in Neuro Oncology and I think you were wise in asking for a new doctor at MD. Maybe request a psych consult to help with the depression (to...
October 04, 2014
view post
-
Hello, Maria
I, too, feel bad that you still carry such anger. When you get the gut punch of a Glioblastoma diagnosis, the days following are such a blur and it is true you have to put your trust into someone else to guide you through those first few days. The truth is that we just don't know what we don't know, so we look to others. I believe it is true that every patient is different and a physician just doe...
October 04, 2014
view post
Load more activity
Loading more activity 
About tromda
Caregiver
Brain Cancer
Cancer Diagnosis, Support