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weAre1's Recent CancerCompass Activity

  • weAre1 has replied to a post on the message board

    Sounds all to familiar, my husband diagnosed July 2017 with GBM in his left temporal/frontal lobe has had significant personality changes since surgery and post radiation.  He talks loudly and interrupts shows, conversations and is overall more childlike.  He yells at our pets and is short tempered most of the time.  He's 56 and unable to return to work or do any sort of work so he's restless and I sti...

    May 27 at 9:32 AM view post
    • weAre1 has replied to a post on the message board

      Sounds all to familiar, my husband diagnosed July 2017 with GBM in his left temporal/frontal lobe has had significant personality changes since surgery and post radiation.  He talks loudly and interrupts shows, conversations and is overall more childlike.  He yells at our pets and is short tempered most of the time.  He's 56 and unable to return to work or do any sort of work so he's restless and I sti...

      May 27 at 9:32 AM view post
      • weAre1 has replied to a post on the message board

        I’m going through the same, 55 yo husband diagnosed with GBM 4 July 2017, currently on tamodar 5 days a month so starting to have symptoms of regrowth. Sitting here while he’s having a MRI meet with the doctor later today. Thoughts and prayers are with you. Dawn

        April 05 at 12:53 PM view post
        • weAre1 has replied to a post on the message board

          My husband 55 was diagnosed with gbm July 2017, has had surgery, radiation and chemo. Since he had surgery yes he Indeed acts like he has dementia. He is unable to work and needs help with medication, food prep and daily living cares.

          March 02 at 4:03 AM view post
          • weAre1 has replied to a post on the message board

            I work every weekend, so I try to have family members do something with him, tonight he went to a cancer telathon and dinner with his sister and brother in law.  We are a blended family, 2nd marriage and combined have 5 daughter!!  So usually someone is available to take him out to eat, for a walk, a drive or anything.  Sometimes we just take him to the mall for a virtual reality experience, a movie or...

            January 14 at 9:31 AM view post
            • weAre1 has replied to a post on the message board

              My husband also has been experiencing severe leg pain, little relief from oxycodone, but nuerontin has done the trick!!  And nuerontin(gabepentin) is a seizure drug as well!!  It works more on nerve pain so is beneficial with GBM and all it entails. I'm a RN as well as the wife of a GBM 4 patient.  I reccommend trying the nuerontin.  Good luck. Dawn

              January 14 at 9:24 AM view post
              • weAre1 has replied to a post on the message board

                I feel for you!!  My husband diagnosed with brain cancer in July 2017 often acts out.  He yells at me that he's dying and I don't even care.  I reassure him he's not actively dying because I'm a nurse and would know if he was dying.  He has personality changes and mood swings and while he has retired I'm still working and supporting the family.  He gets paranoid and suspicious of everyone and...

                January 01 at 10:35 AM view post
                • weAre1 has replied to a post on the message board

                  My husband is experiencing Keppra rash. He started keppra 3 months ago when diagnosed with gbm multiform stage 4. I’ve got him started on clonopin for anxiety and it’s an anticonvulsant also. I’d like to see the keppra discontinued

                  November 08 at 4:58 AM view post
                  • weAre1 has replied to a post on the message board

                    12 months without treatment is fantastic!!  My husband was diagnosed with GBM multiform 7/20/17 and Mayo Clinic told us without treatment he'd only survive 3-6  months.  So we did the brain surgery, 6 weeks of chemo/radiation, now in our month off awaiting an updated MRI.  We were told with treatment median survival is 14 months so I'm optimistic after reading your post that without treatment your...

                    October 13 at 6:17 AM view post
                    • weAre1 has replied to a post on the message board

                      My husband, 55 diagnosed with GBM multiform in the left frontal/temporal area, also has been experiencing erectile dysfunction even with viagra.  He is also on the keppra but is off the decadron.  He's been throught the surgery, chemo and radiation.  I suspect some urine incontinence but cant quite confirm this.  Ive seen improvement with surgery, radiation and chemo with the personality changes b...

                      October 09 at 6:45 AM view post
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                      About weAre1

                      Caregiver
                      Brain Cancer
                      After Treatment, Emotional Support, Chemotherapy

                      July 20, 2017 my world forever changed!! My husband fell in the bathroom telling me his legs wouldn't work. I called the ambulance and he was taken to the ER, after 2 hours of tests we received results; you have a brain tumor and we suspect it's cancer????. Brain surgery follows the following Monday and 80% removed. Confirmed by pathology he's got grade 4 glioblastoma??. We are doing radiation daily M-F and oral temadar 7 days a week.

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